Charles River is proud to partner with the National Scoliosis Foundation (NSF) for our What's at Risk campaign featuring Niva, an 11-year-old daughter of employee Jessica Rayser, diagnosed with a severe spinal condition. NSF is a patient-led nonprofit organization dedicated to helping children, parents, adults, and health care providers to understand the complexities of spinal deformities such as scoliosis. The primary mission of the NSF is advocating for early detection and treatment of scoliosis to prevent spinal deformity from developing or progressing.
Joseph O’Brien, president and CEO of the NSF foundation, is extremely passionate about building awareness and educating patients, doctors, industry health care professionals, and the public. “Time is critical, especially for growing children, and the best way to make the important health care decisions and timely choices is to be properly informed.” Joe’s passion comes from the heart as he has shared his lifelong journey, personally experiencing the physical, emotional, and financial burdens of this condition as a son, a patient and most fearfully, as a parent. Joe himself has endured 6 surgeries for his own scoliosis, however, it drives him to continue to build his foundation and promote awareness daily.
The NSF strives to raise funds to advance the innovation of safe spinal surgical technology and non-surgical treatment options, as well as promote early detection for optimal treatment for the estimated 7 million patients currently affected in the United States alone. Scoliosis impacts infants, adolescents, and adults worldwide; the age of onset is 10-15 years old, and regardless of when detected, currently there is no cure.
We will be fundraising for the National Scoliosis Foundation to continue to increase visibility and promote awareness of scoliosis at the 14th Annual PDA Global Conference, October 21-23 in Rockville, MD. Charles River will be donating $5 for every social media share of Niva’s story, up to $10,000, in support of scoliosis awareness. We are looking forward to joining both Niva and Joe at the conference. Please visit Charles River’s Facebook, Twitter, LinkedIn, or Instagram page and share the story with your network.