Charles River is proud to partner with the National Scoliosis Foundation (NSF) for our What's at Risk campaign featuring Niva, the 11-year-old daughter of employee Jessica Rayser, diagnosed with a severe spinal condition. NSF is a patient-led nonprofit organization dedicated to helping children, parents, adults, and health care providers to understand the complexities of spinal deformities such as scoliosis. The primary mission of the NSF is advocating for early detection and treatment of scoliosis to prevent spinal deformity from developing or progressing.
(Joe O’Brien pictured above with Charles River’s What’s at Risk poster featuring Niva’s story at the 14th Annual PDA Global Conference in October 2019)
Joseph O’Brien, President and CEO of the NSF foundation, is extremely passionate about building awareness and educating patients, doctors, industry health care professionals, and the public. “Time is critical, especially for growing children, and the best way to make the important health care decisions and timely choices is to be properly informed”, he said. Joe’s passion comes from the heart as he has shared his lifelong journey, personally experiencing the physical, emotional, and financial burdens of this condition as a son, a patient, and most fearfully, as a parent. Joe has endured six surgeries for his own scoliosis, however, it drives him to continue to build his foundation and promote awareness.
The NSF strives to raise funds to advance the innovation of safe spinal surgical technology and non-surgical treatment options, as well as promote early detection for optimal treatment for the estimated seven million patients currently affected in the United States alone. Scoliosis impacts infants, adolescents, and adults worldwide. The age of onset is typically 10-15 years old, and regardless of when it’s detected, there is currently no cure.
(Niva presenting Joe O’Brien with Charles River’s donation, October 2019)
Thanks to social media engagement with Niva’s story on Charles River's Facebook, Twitter, LinkedIn, and Instagram, we have made a $10,000 donation in support of the National Scoliosis Foundation. Visit the NSF website to learn how you can continue to support patient education and research.