Charles River is proud to partner with Soft Bones: The US Hypophosphatasia Foundation for our Every Patient campaign featuring Evie, an 8-year-old diagnosed with this rare disease. The mission of Soft Bones, Inc., is to provide valuable information, education, and support for people living with hypophosphatasia (HPP), their families, and caregivers. The Foundation promotes research of this rare bone disease through awareness and fund-raising efforts.
See the importance of collaboration with patient advocacy groups in drug development.
Charles River will be donating $1 for every social media engagement with the campaign, up to $25,000, in support of Soft Bones: The US Hypophosphatasia Foundation. Please visit Charles River’s Facebook, LinkedIn, Twitter, or Instagram page and share with your network.
Fundraising Campaign Update
Thanks to engagement with Evie’s story on our Charles River’s Facebook, LinkedIn, Twitter, and Instagram, we have made a $25,000 donation in support of Soft Bones: The US Hypophosphatasia Foundation. Visit their website to learn how you can continue to support HPP research.